imagesIt’s pouring rain here right now. How’s the weather where you are?

Okay, enough small talk 🙂

Well, day 9 was a little rough. Little worse than medium, but not a Bad day either. First off the good news. Blood counts remained the same. Although the ANC hasn’t budged above diddly-squat (not really supposed to yet at this point), his other counts were acceptable enough that there are no blood and no platelet transfusions tonight. They also measure magnesium, something else, liver and kidney functions. Those were also acceptable, so no extra supplements for that. Just regular protocol meds. Which when I left was saline, tac, and antibiotic through IV. Nothing that should keep him from sleeping. At 10:00 (huh, look at that, my computer says it is 10:00 now), so about now, he should be getting some Ativan (nausea), Dilaudid (pain) and Ambien (sleep). I don’t think he has ever had Ambien before, so I am crossing my fingers that helps him get a good night’s rest.

Alright, so the rough part. It was mostly a pain issue. His skin hurts. It is like the hair follicles have freaked out (well, yeah, his whole body is freaking out over what it is being put through), and when any hairs are touched, it’s sudden intense pain. We are guessing it is connected to the hair falling out phase. And he is ready for that to just be over with. If the hair and its related parts are going to freak and head for the hills, then just go already.

His belly is also hurting him. His GI tract is not happy. Enough with that.

And there is a spot on his abdomen, down near the bottom of his left set of ribs that is extremely sensitive to the touch. Doc is guess there may have been a blood vessel that burst or is leaking and I am probably not getting that quite right. Something that is right under the skin, not in the muscle or bone. But that it should resolve itself. So yay I guess. Needless to say, we were all over the nurse to make sure he got his meds the second he was able to.

images-1Mark loves St. Patty’s day, he is all about the Irish. And mom came through and sent him a little present she made and the kids decorated. You can’t tell from the picture, but on the trim the kids used fabric paint to write “I <3 you forever.” Awww… yeah made us a little teary. What can I say, we’re both a couple of softies. (Oh, it’s a pillowcase, if that wasn’t obvious.)

That's not grumpy face, that getting a little misty face.

That’s not grumpy face, that getting a little misty face.

And he did change to a green beanie right after this… so no pinching. It leaves bruises anyway.

So, what did we do pass the time today? We watched “Skyfall,” which was pretty good. I forgot to mention that yesterday we watched “Flight.” Also good and when it was over, we both said, “yeah, it had to end that way.”

I wanted to start some laundry tonight but it is almost 10:30 and I am thinking that just is not going to happen. Maybe I will shove it all in my wheelie carry-on and do it at the hospital. Did I mention there is a washer and dryer on his floor? But those dishes in the sink aren’t going to wash themselves, so I should probably get to it.

I may have said this before, but it can’t be said enough, I, we, so appreciate all of your support and positive energy you are sending our way. And I love reading your comments. It keeps me keep writing.

Aloha and mahalo
~terri

So when I walked into my house tonight, it smelled like food. Which is really odd, since I don’t cook here. Would someone break in to make themselves a meal? If so, they didn’t leave any dirty dishes behind, so I guess I am okay with it. Weird.

Anyway, not a whole lot to report. Thank you all for knocking on your pieces of wood. Please continue to do so.

He got his daily meds including the growth factor, which is an injection in his stomach. I know, ewwww, right? But I watched and it was okay, just a little odd.

Blood counts were almost identical to yesterday, so he is getting platelets again tonight. Which is good, because he has had a slight bloody nose off and on all day. Nothing bad, but obviously not normal. He felt a little weak and tired most of the day. But we got in our walk this morning while he was still feeling pretty good.

New and fun thing today, the hair is starting to fall out. We noticed little pieces of hair on his t-shirt and realized they were from his beard which had grown back in. So I pulled the clippers out and buzzed the beard as short as I could. Although we knew this was coming, it is still a bit disconcerting to actually have the hair fall out.

Jeff (of “Ask Jeff” fame or also known as my brother) came with me to the hospital this morning and got to sit and talk for a while. Just, to be on the safe side, he took all his safety precautions and put on every protective item they had. 🙂 Hilarious. They don’t have gowns and gloves in giant size.

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Then he was off to go visit with the parents and the kiddos. They all went to the movies and took these pictures. See if you can find my little monsters, it might be kind of tough:

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We tried to Skype with them tonight, like always, but the video was giving us fits. I couldn’t see their faces. I can’t tell you how much I miss them, and how wrong it feels not to be there for them. I know my mom and dad are taking excellent care of them and being the awesome, loving grandparents they are. But that is my job, and it is hard to let it go. I know Mark agrees with that.

Overall, we are rating today as a medium day. Which isn’t bad.

And with that, until tomorrow and aloha,
~terri

All of these are just drops in the bucket of life

All of these are just drops in the bucket of life.        Oh my, how cheesy is that?

 

Friday

Who forgot to knock on wood?  Hmmmmm????

We keep reminding ourselves, eyes on the prize. This is all temporary, and the outcome is worth it.

Yesterday, Mark got his 3rd dose of Methotrexate. It is the medicine to help prevent Graft vs. Host Disease. You get it on days 1, 3, 6, & 11. And it is a chemo, so you know it is going to have fun side effects. Well, this one has the dreaded mouth sores. And of course they blossomed all over the inside of his mouth. He got to the point today where he couldn’t talk it hurt so bad.

The next question, of course, is “And you waited to tell the nurse you were in pain and needed some pain medication, why?” Excellent question, my hoaloha. And there is no good answer. He waited, it got wicked painful. When it got to the point he couldn’t talk we called the nurse and asked her, pretty please, for something to help. She gave him Dilaudid. Good news, bad news. The bad news occured first. Dry heaves. Which you know had to feel delightful on that poor mouth. Good news it brought the pain down from an 8 to a 2. And she gave him some Ativan to calm his stomach, which it did.

But he kinda felt meh all day. A little worse than meh, I guess. It wasn’t a good day, it wasn’t a bad day, except for the episode above. It was a medium day, which I will take over a bad day, any day.

Bad thing is that he gets one more dose of this chemo medicine and probably at least another set of mouth sores… but… if it helps to prevent Graft vs. Host Disease then I suppose it goes into the “worth-it” pile.

Everyone keeps telling us to keep on the symptoms. If something starts creeping up, tell the nurse! Because it going to get worse, not better. It must just be in our nature to want to wait it out and see if it goes away on its own. We need to get it through our heads that at this stage in this game… not gonna happen.

I am looking at his blood counts and not much change from yesterday, except platelets. Yesterday they were 16, today they were 8. If it goes below 10, you get an infusion. So yay! for more platelets tonight. Good news, they can give him platelets to boost em back up. Bad news, usually means a not so hot night as far as sleeping goes.

Another new day, another new drug. I have no idea what the official name of this is called. They just called it a “growth factor”. It starts on Day 7, today, and continues until they are ready to kick him out of the hospital. It helps those lovely new stem cells create all the other blood cells that he needs. I forgot to ask if this has any wonderful side effects. Wait a sec… let me google it. Oh my… goodness, look at all the medical journal articles… where’s the wikipedia one?

I’m back. Oh-kay, I can’t find anything about side effects. So, let’s all find our piece of wood, and hope there are none. This is what I found on marrow.org:

You may also get growth factors — drugs that help the body make more blood cells. Growth factors may help donated cells engraft more quickly. A common growth factor is granulocyte-colony stimulating factor or G-CSF (also called filgrastim or Neupogen®). G-CSF helps the body make white blood cells.

And that about wraps up today, unless I have blocked something out. Mark? Mark? Am, I forgetting anything?

imageMJ here… Not sleeping cus they give Benedryl with the platelets. Anyway, I asked Terri today when I’d start losing my hair… Figured it should have started by now. Well… No later than 20 minutes, I pulled off some whiskers from my beard. Shock, mild pain – mostly from surprise. The first time is just that way, even when you know it will happen. Tomorrow, we will be “shaving” my body and face hair. Pulling out clumps is not my kind of thing. Back to Terri…

I am sitting at my dining room table/desk waiting for Jeff to arrive for a visit. (Hello, Chicago!) Then he is headed to my home, home, to visit with the parents and the kiddos. They will be in heaven. They absolutely love Uncle Jeff!

And I don’t know what the next door neighbors are doing. Sounds like moving furniture and making sure they bang it into the walls while they are doing it. Oh, the joys of sharing a wall with strangers. They also like their TV, loud. And talk, loud. Ooooo, what until Jeff get here. Anyone ever talk to Jeff? Him of the big booming voice? He can be loud. Hee hee.

Until kela ‘apopo
~terri

See there really is a chart with stars

See there really is a chart with stars

Caitie flashing the Hang Loose sign

Caitie flashing the Hang Loose sign

Thursday

Nothing. I got nothing. The man gave me absolutely nothing to work with today.

Good Night.

Okay, you know I can’t just leave it at that.

He didn’t have a great night sleeping, kinda meh. Today was uneventful, medically. His blood counts looked good, you know for someone who just had a stem cell transplant. But no blood tonight, no platelets.

Blood count update:
White blood cell – 0.2
ANC – Diddly-squat
Hemoglobin – 10.1
Hemocrit – 27.9
Platelets – 16

It’s a quiz. Do you remember where to find the “normal” blood counts for reference?

We went to a Discharge class this afternoon. When it happens, what to expect, what to do, what not to do. We pretty much knew what she covered. But it was good to have confirmation. The basics: discharge when ANC hits 1500 two days in a row, live like normal, DRINK LIQUIDS, go to clinic twice a week for check-ups, be a germophobe, exercise, DRINK LIQUIDS, don’t drive until the doctor says you can (something about low blood counts and not being able to concentrate well enough to drive), and wait around until the doctor says it’s okay to leave the safety of the 20 minute hospital circle.

I ran some errands. I don’t like Trader Joe’s, I love Whole Foods. No cribbage today. Ooo… something new we learned today. Don’t blow your nose. You will get a nosebleed. It won’t stop. A doc will have to come pack your nose. It’s unpleasant. So, don’t blow your nose. (If you are a transplant patient; those of us that are not may blow away.)

What else? Hmmm… that’s about it. Told ya, he gave me nothing to work with today. Sooo… knocking on wood…

Aloha
~terri

p.s. I am happy to have nothing to report 🙂

yoga_lady_clipartWednesday

A good night’s sleep does wonders. Definitely feeling much better today. We walked 5 laps around the floor and got him a gold star for his chart. 🙂 It sounds silly, but these people take their gold stars very seriously. Nurses tell me that inactivity and not getting on your feet lead to pneumonia. One of the nurses said that if a patient gets pneumonia, it is the nurse’s fault. He had the energy to get in the shower and apparently that counts towards activity too.

He had some food the eat; a little of this and a little of that. He hasn’t been drinking as much as he is supposed to, but was told to keep track of anything that is liquidy, like popsicles, because they count too. I wonder if I should sneak him in a 6-pack…

On that note, he has also started doing his meditation and Qigung again. Zen power to those stem cells!

The internet kept cutting out at the hospital… grrr… it is amazing how addicted we get to out electronic devices and can’t function when they don’t work. So we finished our cribbage game, and I won, again! Go me! I will enjoy it while it lasts because his brain is definitely coming back and I won’t be able to stay on top for long.

This evening the internet stayed up long enough to watch a Star Trek and Skype with the kids. I miss them so much! I don’t know what I would do without Skype. The boy fell on the playground and gave himself a bump to the head. Lumpy and all. I feel so helpless. And I am telling my mom what to do, like she would have no clue how to take care of an injured child.

So, on the how does Mark feel scale… pretty good. (Where is my block of wood? Oh there it is… *gives it a sharp rap*) He even ordered a real dinner and ate all of it (baked cod, steamed broccoli, and cooked carrots, for those of you playing along at home). Of course, it was too much of a good thing, and gave himself a little tummy ache afterwards. Blood counts are still stable, looked about like they did yesterday. Getting some blood tonight, but no platelets. Just going to play vegetarian vampire 🙂 Because I talk about the blood counts and the numbers so much, I put a reference spot to the right side of the screen, so you can compare to “normal” counts when I start throwing out numbers. When I checked them today his ANC was blank, so I don’t know if they were zero or just not filled in yet.

So tonight is laundry night, but still hoping to get to bed before midnight. That’s about all for now.

Aloha my hoaloha
~terri

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These ain’t no action poses, baby…

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… this is real live Qigung!

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OLYMPUS DIGITAL CAMERATuesday

I forgot to knock on wood yesterday, didn’t I? It wasn’t a bad day, just not quite as good as yesterday. He had a bad night as far as getting sleep goes, so not quite as perky. He did eat some real food. A tiny bit as far as you and I are concerned, but it was real solid food. So, yay! We did two laps around the floor before nature called.

Medically, everything was pretty much the same as yesterday.

Add to the mix though, because it is oh so fun and majorly embarrassing, diarrhea. And the fact that they wouldn’t give him anything to treat it (Imodium) until they were sure he didn’t have any bacterial infection. Well, bacteria has been ruled out and they are now treating it.

For those of you covering your eyes, crying “TMI!!!”, remember I am also writing this for people that are also going through this or may be having treatment for MDS (or even just a marrow/stem cell transplant) in the future. But for our family and friends, I say 😛 Just checking to see what your embarrassment factor is. And how much Mark will let me get away with writing…

Right now he is getting platelets, but no blood tonight. No new meds yet. Although, new young doctor came by tonight and wants to try something new to help him sleep. *rolls eyes* These doctors… they just want to throw a new drug at every twitch. *deep breath* I love our doctors and I love our nurses. They are taking very good care of him. And I want Mark to get the medications he needs so he is comfortable, as comfortable as he can be, and can concentrate on healing.

We had a visit from the “discharge nurse” (that is what I am calling her, because I can’t remember her real title) who talked to us, mostly me, about what to expect when he is discharged. Which may be a little sooner than I expected. I had it in my head that he was discharged ~30 days post-transplant. She said it was more like 21 days. But beyond, eating, drinking and moving around like normal (sorta), his ANC count has to be up to 1500. I talked about that one yesterday. It was 260 when we checked in to the hospital and diddly-squat today (yes, that is the medical term for it). She also talked about what was and was not okay at “home” (remember we will still be in St. Louis for about a month)… and a whole lot of other things that I will be responsible for and did I tell everyone I am not a nurse? Sigh… the things we do for the ones we love. I kid. She left me with a book and they give a class, so how hard can it be?

Anyway… so today was a fairly mellow day, which I will take. The nurses say that the next 3-4 days may be rough. And to expect a lot of two steps forward, one step back. But as long as the overall direction is still forward, that is good enough for me. I just double-checked with his nurse and she said that blood counts don’t usually start to go back up until days 10-12. So between now and then it is common for him to get fevers and other things off and on, because, you know, his body is TOTALLY FREAKING OUT right now.

Side notes for anyone that is going to be a caregiver: You do a lot of hurry up and wait. I feel like I am rushing all over the place, while at the same time just sitting around. I fetch things, ask lots of questions, double-check a lot of things, run to the grocery store, run to Target, do laundry, do dishes, take the garbage out, etc. I think about the things that I need to do outside the hospital and try to figure out how I am possibly going to get them done when all I want to do is be at the hospital. Oh yeah, and get my work (like the job thingy) done too. I am someone who likes routines, and knowing what to expect. So I take my hour in the morning to sit and drink coffee and read blogs and news, before I get things ready to come here; which involves packing up things to bring to Mark, making myself lunch and dinner to bring with me, packing up the things I am going to need for myself during the day. I love my wheelie carry-on. I would never be able to haul all this stuff in and out of the hospital without it. I look at some of these ladies walking in and out with just a purse and I am so jealous. When I do get home, it is laundry and dishes and unpack what ever I have brought home from the hospital/grocery store/Target, have a cerveza, Skype with my kids (if I get home early enough), finish up my blog post, turn around in circles trying to remember what I have forgotten to do, before I finally go to bed. I am not whining about this. It is just what needs to be done and I am happy (okay, yes, I would much rather we were doing something that didn’t involve a hospital) to do it. But it is good to know what to expect if you ever have to go through it yourself. Okay, enough about me.

So, it’s about 6:00 and Mark is sleeping. The nurses say just let him sleep. As long as he gets up at sometime during the day and moves around this is fine for now. He may or may not sleep the evening away. If he wakes up, we may watch some Star Trek, Skype the kids, finish our Cribbage game. If he stays snoozy, I will stream the surfing competition (today is the last day) and hang out for a while.

Okay, I really didn’t think I had much to say and this has turned into a blather on post. I think I will go heat up my dinner and just save this to look at later. Then I will decide if I want to delete most of it.

I’m back. It’s 11:20pm and I just got home. Mark woke up early this evening, feeling better. Amazing what sleep does for you, isn’t it? But no Star Trek and no cribbage. We did Skype with the kids. I stayed late at the hospital so MJ and I could watch the semi-finals and finals of the Quiksilver Pro surfing competition. (Have I mentioned we like surfing?) Our man, Kelly Slater won the event and we were so stoked. We were high-fiving each other for two hours everytime he had a good wave. It was a good evening. 🙂 Anyway, he didn’t want to risk another bad night and went ahead and took the new med, that the doctor recommended. I hope it does its job and he gets a good night’s sleep.

A note: his ANC counts weren’t really zero. They had left the spot blank because they didn’t have the numbers yet, which I mis-interpreted as zero. They were actually at 200.

And since it is so late, I really don’t feel like going back and trying to edit this post, so you are getting it all, the good, the bad, and the ugly. Please forgive any typos.

A hui hou kakou,
terri

A Stem Cell

A Stem Cell

Monday

Baby steps 🙂 When I got to the hospital, Mark was sitting up in bed with a big grin on his face. He was back. Getting him off the Ativan was a good thing. No headaches. If he was nauseous, he didn’t say anything. It was nice to have him up and talking. He ate some rice, drank a bunch of ensure, and we walked two laps around the floor. Which is great, because he hasn’t really been out of bed in almost a week.

Only real issue is with those stupid mouth sores. They have an official name… I am trying to find it on google, because of course all my paperwork is at the hospital. Found it – oral mucositis. They can end up being a real problem. He has them on his lips, the back of his throat and down his esophagus. Right now I think the main problem it is causing, other than just being painful, is swallowing. He has a saline rinse that he is supposed to use every two hours and then his magic mouthwash that he can swallow to help out those ones down the esophagus and numb it all out.

Every thing else is as to be expected. Tired, not a lot of appetite. Nothing they are concerned about. No new meds today.

Blood counts continue to drop. His ANC (Absolute neutrophil count) was zero. They are a type of white blood cell. So although it is supposed to hit zero, it’s a bad thing because it means his ability to fit infection is also zero. His actual white blood cell count was 0.2 (normal is between 8-10). Platelets were 9 (those should be between 150-450) So all of that also means that his is getting blood and platelets tonight.

He started to poop out – ok, poor choice of words – lose some energy this afternoon. After we got the above blood counts back, it makes sense. As soon as he gets his blood I am sure he will start to feel better. Hopefully he will get a good night sleep and be all perky (do guys get perky?) in the morning again.

We started a cribbage game before he started to conk out. When I had to start counting points and he was double checking them with me, I knew he was hitting his limit for the day. We will finish the game tomorrow and see if I can beat him again. We finished our evening with an episode of Star Trek: Next Generation and a Skype with the kiddos.

So now I will watch the guys take out their papa he’enalu in Australia, have a pia and finish a couple loads of lole lepo. (Are you enjoying your hawaiian lessons from this haole?)

Kipa hou mai,
terri

I just like this picture :)

I just like this picture 🙂

Are you getting sick of me yet?

Nothing much to report today, but that is a good thing. Some kind of computer glitch in the lab means I didn’t get blood counts before I left the hospital today… so I don’t know if he was going to get blood or platelets tonight either. I am a little obsessive about his numbers. I take lots of notes so I can compare things.

A new day means a new drug. All of us would like to cut back the amount of Ativan Mark is taking. It just knocks him out. So the doctor decided to “switch” him to dexamethasone. This is for nausea. Good thing about it, is it does not cause drowsiness. And if it isn’t quite doing the trick he can get a boost of Ativan.

Headache was much better today. Doc says he thinks that means the chemo is finally getting out of his system.

His hair is still growing, so we buzzed his head again. It had just gotten long enough that it was fuzzy and fun to rub, but he didn’t really like me doing that. Maybe tomorrow we’ll buzz the beard. He’s ready to buzz all of it so the body hair quits getting ripped out by the roots every time someone takes some tape off.

Still not much of an appetite. But I am cooking some rice right now to see if I can tempt him to eat it tomorrow.

That’s all for now. Love to all!

~terri

Saturday

images-1I just want you to know that I read every comment you all make whether it is here on the blog, or on Facebook, in an email or Skype, or whatever. I am sorry that I haven’t managed to reply to all of them. Somedays just get busy, but I read them and I cherish them, and they fill my heart. I think I can speak for Mark on that as well. You are all my angels!

I did put my email address over to the right and down a little, so that if you want to get a hold of me or Mark directly, you can. Just please don’t put me on some mailing list. 😉

12:00pm: When I came in this morning, I found a note on Mark’s white board from Judy, his night nurse, with his orders for the day: Shower! Up and Walking! He said he had already walked to the end of the hallway and back. We will see if I can get him to go for another walk later. He is currently not hooked up to his IV pole and will be free of it until 2pm. So I am going to see if I can get him in the shower before them. Of course, right now he is napping…

4:30pm: Went for another walk, has some peaches and applesauce for lunch. We’re thinking of trying rice tomorrow. Woo Hoo! I know this is so exciting 🙂 We played a game of cribbage. I won! I don’t care if he is muddle-brained, I am claiming it! They added a new drug, Valtrex, which is an anti-viral. Nothing wrong, just a prophylactic. (trying not to let my 13-year old out and giggle)

Later: All in all not a bad day. He had a headache most of the day. But that may be because his pain meds kept being brought late, instead of catching the headache early. His night nurse, Judy, is awesome. She takes such good care of him and sits down with me and goes over everything that is going on, exactly what they are giving him and why. Answers every single question and never acts rushed. But he has had her for 3 nights including tonight, so I think she gets a few days off, and tomorrow will be someone new.

No new drugs today. No blood transfusions, no platelet transfusions. His blood counts are going down, as they are supposed to.

Tonight was pretty mellow. I crawled in bed with him (it was, shall we say, cozy) and we watched the Quiksilver 2013 Pro. It’s a surfing competition being held on the Gold Coast in Australia. We should be able to catch that for another day or two. Just in case you are trying to find it, don’t bother with ESPN. We stream it on the lap top direct from the Quiksilver site.

I was going to try to make him rice tonight, but I hung out at the hospital too long and it needs to simmer for a couple of hours. Maybe I can wake up early. Stop laughing!

Some science-y people are curious about his central line. Here is a thumbnail. If you really want to see it, you can click on it to make it bigger.

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And to prove he was up and walking:

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Yup, that’s an action pose, cuz I told him that no one would believe he was walking if he was leaning against the wall while I took the picture.

 

Night all – catch up with you tomorrow.

~terri

imagesSince yesterday (Thursday) was Day Zero, but the transplant took place at 12:20ish am the next day (Friday), we get a second Day Zero. At the stroke of 12:20 am Saturday it will officially by Day 1.

I fluffed the pillows and put out the welcome mat, so I hope those stem cells are making themselves at home. Hmmm, maybe I should have baked them some cookies.

Today was fairly uneventful, YAY! Still headachy, nauseous, and tired. He snoozed a lot. But he did get out of bed and sit in the easy chair for a while. As I was leaving tonight, his nurse told me that tomorrow I was to make him get out of his room and walk around the floor for a while, even if he had to tuck his puke bucket under his arm while he walked.

Tonight at 24 hours from transplant they are adding a new drug. It’s called… wait… I made her print it out for me… Methotrexate. It is to help prevent Graft vs. Host Disease (GVHD). Basically that is when the new cells reject the body they have been placed in. There are a lot of levels of this disease. Apparently you do want to get a mild case of it. It is like you build up immunity to it. But the drug is given as a prophylaxis. It’s okay, I had to look it up too. It basically means preventative. Kinda like all the antibiotics he is on, is to help prevent any infections. Judy, the nurse, told me that although it may have a couple of side effects (don’t they all!), patients really don’t have a reaction to it. So I felt safe leaving him in her capable hands tonight and sleeping in a bed instead of the easy chair in his room. You wonder why patients are always so exhausted? Because it is impossible to get a good night’s sleep in a hospital room! Some caregivers/family stay with their loved one 24/7. I don’t know how they do it. I just have to trust that Mark is in capable hands and they will take good care of him.

Teeney hiccup. Mark did develop a slight fever this afternoon. But it never went over 99.7, so the nurses were like “eh, whatever”.

So the drugs he is on right now: antibiotics (cefepime),  anti-rejection (tacrolimus), anti-nausea (Ativan), anti-pain (Dilaudid), and adding the anti-GVHD (Methotrexate). Then he gets blood and platelet transfusions as needed. They gave him two bags of blood today, but said his platelets were good.

The latest blood tests showed that his kidneys are bouncing back from the beating they took. Yay! All I have to say on the subject today is, that if you are agree to participate in a study, make sure you read all the fine print and are aware of the possible reaction/side-effects. Go-go science and research, but make sure you know to what you are agreeing.

In addition to the Ensure he has been drinking, Mark tried some applesauce and diced peaches today. They stayed down and tasted good. So I am running to Whole Foods in the morning to pick up some organic versions for him.images

I talked to Caitie tonight about the transplant. And she said she pictured the insides of his bones like city streets with houses and sidewalks. And the new cells, which look like cheerios with eyes and smiles BTW, are walking down the sidewalks picking out their new homes. I like that.

Okay, little noodges. Have you given blood lately, have your given platelets, have you registered to be a bone marrow donor? End of PSA. Thank you. 🙂

PS: Also huge thank you to all of you that are donating funds to us. You have no idea how much this eases what we have to deal with. Every little bit helps and I am so grateful for it. End of story on that. <3 <3

~terri