coasterWow… so here I am sitting on the bed in our “Almost Home” place. The wait of the past four days has been a roller coaster ride. Playing hookie with the kids and spending time with them before we left was really, really good. It was a high that I will not forget. The amount of love that was shared in our home was stellar. As for the lows, they were not important and I just don’t care to remember them.

The next twenty days will be like that. Some highs and some lows. Terri will be with me the first night, I start my first dose of busulfan at 9pm. Hell of a time to start chemo and I get that every 6 hours for 16 doses. I can think of other kinds of doses I would rather have, but this is what I got. This is followed up by Cyclophosphamide for half a dozen doses, to kill off anything left and hopefully not me in the process. This is unlikely cuz I’m in no mood for dying. These are probably going to be the lows, and I will be happy to forget them…

Friday will be a high, because Caitie and Kai are coming for a visit. They will get to see “Not Home” and “Almost Home”. It will be good for them to see the nurses and doctors are taking good care of me, and good for me to help me go through what has to be. There will be others. I know a few friends are coming to visit and that is always a good time to be had.

So send your prayer, love and good vibes my way, 😉 oh and pixie dust too. It does help make a low into a high. It is something doctors cannot measure on their instruments, but it exists and it is good. Thank you for your support. I love you all!

~ Mark

6 Comments

  1. Mark, I am sending about a ton of pixie dust milked from the most prestigious faeries available. Expect your glitter to arrive by the bushel.

  2. I love u Msrk and all ur positive thoughts!! Im sending all positive prayers and thoughts! To you!! XOXOk

  3. Been thinking and praying for you and the doctors to take great care of you! Sending regions full of healing pixie dust that I’ve been saving for this day to surround you with hope and love! Be brave! Rip that wave Flynn!

    “I took off on a wave, went down the side, popped out the other end, and went, shit, I’m still alive!”
    Greg Noll

  4. Linda Senenfelder

    Sending lots and lots of Prayer your way with plenty of Pixie dust to help brighten your day. Kiss Catie and Kai for me. You are all in my prayers until this thing is over..Stay strong!