suitcaseI think I am writing that correctly. They consider infusion day (transplant day) to be Day 1, so all the chemo and treatment leading up to it are on countdown days.

Of course leading up to today, we had to hit another bump in the road. We wanted to leave on Tuesday, so that we wouldn’t feel rushed on Wednesday when we were actually supposed to report to the hospital. Well, on Monday night it started to snow, and snow, and snow. Forecasters were predicting up to 10 inches, so of course we were starting to panic. We live at the bottom of the hill and our street is always the last to be plowed. If there was any accumulation of snow, there was no way of getting out. So Mark took my car and parked it up the street at the top of the hill. That did the trick. No hills to climb, just cautious driving until we hit the paved streets.

Once we got to St. Louis we went to our little rental house and moved in. Well, I moved in and put MJ’s bags by the door. πŸ™‚

Wednesday it was time to get started on all the hospital stuff. First off was blood tests. Only 7 vials of blood, not to bad this time. Then they had to put his central line in. Also know as a port or catheter. Specifically it is a Triple Lumen Trifusion port. For anyone that is totally in the dark, it is a semi-permanent IV that goes directly into his chest. Β It is much more efficient way of giving medications than the traditional, in the arm, IV. Unfortunately they do it as a surgical procedure, so I didn’t get to watch. Double unfortunately, the sucker hurts. He’s getting extra pain meds, until his body adjusts to the rude invasion of this port and it doesn’t hurt so bad.

Good news was that his platelet count was just above the required amount for a transfusion, so we were able to skip that procedure.

Getting settled in

Getting settled in

We got into the hospital room. It is nice and big, as far as hospital rooms go. It’s still a hospital room though.

At 9pm they started the chemo. They gave him a shit-load of other drugs that I couldn’t even begin to list. Anti-nausea, anti-seizure, anti-this, and anti-that. If I can remember right, he gets 16 rounds of this chemo drug every 6 hours. Then they switch to a different chemo drug. I am sure as the days go by I will get a better grasp of what is taking place. Or I won’t. But the chemo goes for 8 days…

He feels better than he expected, but not as good as he hoped. He wants a shower, but we have to wait for the nurse. Seems like we do a lot of waiting…

So here we sit now… contemplating what to have for lunch. I probably should go try to find the cafeteria. And I should try to get some work done.

We are overwhelmed by the generosity of people that have already donated through the Give Forward site. And how we can say thank you, although that is so inadequate to how we are feeling.

Honestly, Mark truly believes in the energy that flows through and around us. And so all your positive energy, vibes, thoughts, prayers, and pixie-dust is as important to his success as everything else we are doing.

Mahalo, Terri


  1. Glad you guys made it to the hospital. I’m flying some prayer flags for you both, on the Mt. Everest of my mind. BTW, that was a cool pic; Mark smiling and rockin’ the chapeau πŸ™‚

  2. As your “almost home” neighbors in St. Louis, Jerod & I are eager to help & support your family. Feel free to ask any questions about the city, Terri – even though we’re newcomers, we know good places to eat, get coffee, etc. Praying for quick relief from the pain, Mark!

    • Thank you Charity & Jerod!

      We will certainly take you up on the offer. Your own countdown is coming up soon too. Congrats! So don’t forget to take good care of yourself, Charity. Sorry, can’t remember, boy or girl? Charity, please heed any warnings about a visit, because of the chemo… Jerod you are welcome to anytime, unless you are sick.

  3. Ahh..seeing you and reading your blog made me feel better today! I think of you and the family everyday…all positive thoughts I want you to know!! I’m working on more donations for you two…keep fighting my friend!