One step back…

Last last few days have been frustrating health- wise. I’m trying to get stronger, eat better, all those good things. But they don’t have my meds right and it makes me nauseas and drained of energy. As Terri said they screwed up a week ago and I was taking to much meds. So they had me stop taking my¬†tacrolimus (anti-rejection/immuno-suppresant), tac for short. I understand that my kidneys counts are elevated, but tac is what is keeping my new immune system from attacking the rest of my body. Graft vs Host disease can be really nasty, and can kill you. So I’m a bit on edge right now.

We see my Doc tomorrow, instead of the nurse practitioner. She’s great, but I trust my doctor. He’s the Man!¬†I don’t think we will be going home early this time, too many issues to solve, some big (tac), some small (nausea). And then when we do (which I can’t wait for), Terri still has to drive me to St. Louis once a week until Day 100.

The weekend with the kids was good for all of us. Unfortunately, Caitie was getting over a sore throat and had a serious case of the sniffles. I couldn’t give her the love she really needed from me, she got some… I hope it was enough. They won’t visit with us for another two weeks and that is a long time for both her and me. Kai got his full share, which is a good thing. I think Terri got her’s too.

I don’t know how she does it, but she is incredible. So thank you My Love! for all the big and small things you do.


~ Mark


  1. Sometimes a little backward is inevitable when moving forward. But right here, right now, it sounds manageable. And the Now can be a good place to be. Flying some flags for you and yours!


    • Thank you Kevin, yesterday was just a tough day. Appreciate your encouragement and support!

  2. T is pretty darn amazing, isn’t she?! I’m glad you got *some* kiddo time…here’s to a lot more in the near future!

  3. You have hemogoblins? This is more serious than I thought.